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Cover Rare Diseases e-Resource Guide eReport
 

 

  • Front Matter
    • Preliminary Material
  • Introduction
    • Definitions
    • Orphan Diseases and Drug Legislation
    • Healthcare Provider Knowledge and Awareness
  • Comprehensive Review of Rare Diseases Electronic Resources
    • National Organization for Rare Disorders
    • Genetic and Rare Diseases Information Center
    • Canadian Organization for Rare Disorders
    • Rare Diseases Europe
    • Orpha.net
    • Miscellaneous Resources
  • Application to Practice
    • Patient Case
    • Table 1-2: Porphyria Patient Case with e-Resource Information
    • Summary
    • References
    • Annotated Outside Resources

Summary

in Rare Diseases e-Resource Guide eReport
Editor:
Melinda (Mindy) Throm Burnworth
DOI:
https://doi.org/10.37573/9781585285082.012
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