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BROWSE
SUBJECTS
CLINICAL RESOURCES
DRUG INFORMATION
EDUCATION AND TRAINING
PHARMACY PRACTICE
CAREER DEVELOPMENT
AJHP
DRUG INFORMATION
PROFESSIONAL DEVELOPMENT
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Table of Contents
Front Matter
Preliminary Material
Introduction
Definitions
Orphan Diseases and Drug Legislation
Healthcare Provider Knowledge and Awareness
Comprehensive Review of Rare Diseases Electronic Resources
National Organization for Rare Disorders
Genetic and Rare Diseases Information Center
Canadian Organization for Rare Disorders
Rare Diseases Europe
Orpha.net
Miscellaneous Resources
Application to Practice
Patient Case
Table 1-2: Porphyria Patient Case with e-Resource Information
Summary
References
Annotated Outside Resources
Orpha.net
in
Rare Diseases e-Resource Guide eReport
Editor:
Melinda (Mindy) Throm Burnworth
DOI:
https://doi.org/10.37573/9781585285082.008
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