Jump to Content
Jump to Main Navigation
HOME
BROWSE
SUBJECTS
CLINICAL RESOURCES
DRUG INFORMATION
EDUCATION AND TRAINING
PHARMACY PRACTICE
CAREER DEVELOPMENT
AJHP
DRUG INFORMATION
PROFESSIONAL DEVELOPMENT
Sign in
Sign up
SEARCH
Advanced Search
Help
Sign in
Sign up
HOME
BROWSE
SUBJECTS
CLINICAL RESOURCES
DRUG INFORMATION
EDUCATION AND TRAINING
PHARMACY PRACTICE
CAREER DEVELOPMENT
AJHP
DRUG INFORMATION
PROFESSIONAL DEVELOPMENT
SEARCH
Advanced Search
Help
Search
Table of Contents
Front Matter
Preliminary Material
Introduction
Definitions
Orphan Diseases and Drug Legislation
Healthcare Provider Knowledge and Awareness
Comprehensive Review of Rare Diseases Electronic Resources
National Organization for Rare Disorders
Genetic and Rare Diseases Information Center
Canadian Organization for Rare Disorders
Rare Diseases Europe
Orpha.net
Miscellaneous Resources
Application to Practice
Patient Case
Table 1-2: Porphyria Patient Case with e-Resource Information
Summary
References
Annotated Outside Resources
Definitions
in
Rare Diseases e-Resource Guide eReport
Editor:
Melinda (Mindy) Throm Burnworth
DOI:
https://doi.org/10.37573/9781585285082.001
Restricted access
Email this content
Share Link
Copy this link, or click below to email it to a friend
Email this content
or copy the link directly:
https://publications.ashp.org/abstract/book/9781585285082/ch001.xml
The link was not copied. Your current browser may not support copying via this button.
Link copied successfully
Copy link
[3.215.190.193]
3.215.190.193
Sign in to annotate
Close
Edit
Character limit
500
/500
Delete
Cancel
Save
@!
Character limit
500
/500
Cancel
Save
View Expanded
View Table
View Full Size
